Glaucoma Support Groups
There are two sides of glaucoma research and support: finding the cure, and helping people afflicted with the disease lead full and healthy lives.
Support Groups Online
There are several active online glaucoma support groups.
Facebook Groups
The Glaucoma Eyes group and the Glaucoma Support group let people with glaucoma share their stories and offer each other support.
The Glaucoma Eyes group on Facebook is a private support group for glaucoma patients, glaucoma suspects, glaucoma family members and friends of those with glaucoma. Support is based on personal experiences relating to care of the mental, physical, and emotional aspects of managing glaucoma.
The Glaucoma Support group on Facebook is a private group where glaucoma patients can exchange notes and websites, offer each other support, and help to increase glaucoma awareness.
Support Groups for People with Glaucoma or Low Vision
Eye2Eye Peer Support Program for Vision Loss — Offers one-to-one support over the phone in English and Spanish. Affiliated with Rutgers School of Health Professions in Newark, New Jersey, Eye2Eye is a free, phone-based, peer support program to assist visually-impaired adults and their families.
Glaucoma Support and Education Group (GSEG) — this New York based support group hosts virtual meetings and uses Facebook and email to post its announcements. Email GSEG to request to join their email list.
Glaucoma Support – Facebook private group
Glaucoma Support – Facebook community
MyEyes Sight Supporters — Online support network for glaucoma patients.
Online Google Group: APUP (Adult Patients Under Pressure) — must have a Google account to join.
The Glaucoma Community (website and mobile app)
Virtual Glaucoma Support Group – Facebook public group (Kent Association for the Blind, UK)
Support for Caregivers
Caregiver Action Network
A non-profit organization based in Washington, DC providing education, peer support, and resources to family caregivers across the country free of charge.
Additional Information
Still not sure where to begin? For more information about support groups including types of groups, benefits, and what to expect, this article from HelpGuide.org may be helpful.
If you would like to recommend an online support group, please let us know.
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