Glaucoma Patient Summit
The Glaucoma Patient Summit is an annual event that highlights advances in treatment options and provides practical information to help patients understand and live with glaucoma.
How Can Patients Become Partners?
Discover the difference one day can make when glaucoma patients gather to share their experiences, learn about glaucoma care from the experts, and take charge of their own vision health.
Jeffrey Soohoo, MD: I think events like this are important because they show what else is out there. They bring in kind of a larger picture to someone’s personal chronic disease. I think as a glaucoma patient you might even feel isolated, especially if you have advanced disease. You might not have a lot of friends that have glaucoma. So bringing together people that have different kinds of glaucoma, people that have had different degrees of visual impairment from glaucoma, and then connecting them with researchers and educators to share ideas and share information.
Colleen Silveira: The information in which the doctors are relaying all different topics of glaucoma has been a fantastic spread of ideas, thoughts, technology, concerns. Having patient stories that also were on the panel today was great, but I think it just encompassed everything that any glaucoma patient has ever thought or wondered or had concern about, and so I would absolutely come to this every year.
Rebecca Vilendrer: Well, I think it’s important to learn as much as you can about glaucoma as a patient. And this forum gives you the opportunity to learn from ophthalmologists, to learn from other patients, to learn from the drug representatives, from the companies. And so it’s a forum where you can learn more and I think that’s very important.
A. Sydney Williams, MD: A patient can really get an idea of the steps that they can take to further their interactions with their doctor, to understand when a second opinion might be necessary, to understand when it’s important to see a glaucoma subspecialist, and also to interact with other patients in a kind of informal format in a way where you can hear stories of other people that have followed the same path that you’re following.
David Epstein: Any way that GRF can help educate patients is a phenomenal thing. I’m amazed at the turnout and I think it’s a great event and it’s super helpful, especially for someone like me.
Marilyn Rogers: Hearing everybody speak, it seems like people should really get a specialist as soon as they know they have glaucoma.
Yvonne Ou, MD: I think it’s really important to also raise awareness about glaucoma and highlight the needs that patients have, for patients to hear about what’s going on in the research arena and new technologies, but also for us to be able to know what are patients concerned about.
Hannah Eckstein: When you’re here in person and you see the passion behind it, it really puts you in a place where you realize, oh, something is actually happening. Someone actually cares about me and everyone else who has this disease.
Shan Lin, MD: You get an overview of what’s the latest in glaucoma management and taking care of yourself, and it lets you be really an active participant in your own care.
– End Transcript. –
In 2019 we hosted our first annual Glaucoma Patient Summit, a live forum sharing the latest treatment options and practical insights into living with glaucoma.
Attendees represent a diverse population, from people born with glaucoma to the newly diagnosed. Patients and caregivers have the opportunity to network, deepen their understanding of glaucoma, and hear about emerging pharmaceutical and surgical approaches.
Feedback from participants illustrates how powerful this kind of collaboration can be when you face a complex illness that threatens your vision:
“Hearing patient stories from the panelists was great, and I think their stories encompassed everything that a glaucoma patient has thought or wondered or had concerns about. I would absolutely come to the Glaucoma Patient Summit every year.”
— Colleen Silveira
“As a patient, I’ve come to understand that it’s important to know as much as you can about glaucoma. The Glaucoma Patient Summit gave me the opportunity to learn from ophthalmologists, from other patients, and from drug representatives.”
— Rebecca Vilendrer
“The Summit introduces participants to the important steps that are available to get the most out of doctor appointments, to understand when a second opinion might be necessary, and to realize when it’s time to see a glaucoma sub-specialist.”
— A. Sydney Williams, MD
“Any way that GRF can educate patients is a phenomenal thing. I’m amazed at the turnout at the Summit and I think it’s a great event. It’s been super helpful, especially for someone like me.”
— David Epstein
“When you’re here in person and you see the passion behind this event, it really puts you in a place where you realize, oh, something is actually happening. Someone actually cares about me and everyone else who has this disease.”
— Hannah Eckstein
Register Now for the 2022 Patient Summit!
Saturday, June 25, 2022
Oak Brook, Illinois (near Chicago)
$75 each (early bird pricing)
$95 each (after May 31)
Sessions and topics at the 2022 Patient Summit will include:
- Glaucoma, A Patient’s Perspective
- What Is Glaucoma: An Overview
- Current and New Pharmaceutical Treatment Options
- Current and New Laser and Surgical Options
- Audience Questions and Answers
- Glaucoma Research Update
- Clinical Trials — What Have We Learned and How You Can Help
- How to be your own Healthcare Advocate
- Living With Glaucoma
- “The Role of Diet and Exercise in Glaucoma”
- “Will Alternative Treatments help me?”
- “The Emotional Aspects of Glaucoma”
New in 2022: Post-Event Workshops
Limit one workshop per attendee; Limited seating. Please choose one workshop (optional) along with your ticket purchase. There is an additional $25 fee to attend a post-event workshop.
- Low Vision Technology Tips — This workshop will include practical tips, low vision resources and demos for glaucoma patients.
- Coping with Glaucoma — This workshop is for those that seek emotional support from professionals, family, friends, and other glaucoma patients.
- Glaucoma at Home — This workshop will explain home IOP monitoring and provide practical tips for taking care of your eyes.
The 2022 Glaucoma Patient Summit will not be live streamed. Most sessions will be recorded and the videos will be shared on the Glaucoma Research Foundation website one month after the event.
For more information:
If you have questions about the 2022 Summit, please send an email to Brizette Castellanos.
2021 Video Gallery
2021 Patient Summit Videos
2020 Video Gallery
2020 Patient Summit Videos
2019 Video Gallery
2019 Patient Summit Videos
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